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Helpful Links
General Carers Websites
www.carers.gov.uk The government’s website for carers
www.carers.org the site of the Princess Royal Trust for Carers. Information for carers including a chat room and discussion boards.
www.icis-info4life.org.uk An information service putting people in touch with services offering care, support or advice in West Sussex.
www.carersonline.org.uk The website for Carers UK
www.carerssupport.org.uk Carers Support Service for Crawley, Horsham and Mid-Downs
www.carerswsx.org.uk Carers Support Service for Adur, Arun, Worthing & Chanctonbury
www.westsussexcarers.org.uk West Sussex County Council Adult Services and Children and Young Peoples Services website.
General Health
www.doh.gov.uk Department of Health
www.nhsdirect.nhs.uk NHS Direct. General health care advice, including frequently asked questions and the facility to email your enquiry.
www.wsussexhealth.org.uk For health services in West Sussex
www.healthinaaw.nhs.uk Health services in Adur, Arun and Worthing
www.sussexpartnership.nhs.uk News & information about health and well-being in West Sussex
www.stwh.co.uk St Wilfrid's Hospice. Providing specialist palliative care through in-patient and community services
Parent Carers
www.cerebra.org.uk Information for parents and carers of children with brain related conditions such as Hydrocephalus, Cerebral Palsy etc.
www.cafamily.org.uk Contact a Family provides information for families caring for children with disabilities or special needs.
www.cancerbacup.org.uk Information on types of cancer, treatments and practical aspects of living with the disease.
www.epiweb.org a website set up by parents for parents of children with epilepsy.
www.face2facenetwork.org.uk A new site produced by a network of local support groups for parents with disabled children. The site features personal accounts, advice and news.
www.nas.org.uk The National Autistic Society website including information about Autism and Aspergers Syndrome, a guide for parents and carers, publications and frequently asked questions.
www.pacso.org.uk Parents and Carers Support Organisation. Supporting families in the Chichester District and Bognor Regis with a young person who has a disability.
Information about particular conditions
www.ukselfhelp.info A website listing numerous UK self-help groups websites and telephone numbers.
www.afasic.org.uk The parent-led organisation helping children and young people with speech and language impairments and their families. Information, latest news, good practice and local groups.
www.arthritiscare.org.uk Information on arthritis, treatments and everyday life as well as news, campaigns and useful contacts.
www.alzheimers.org.uk The Alzheimer’s Society website with useful fact sheets and advice.
www.brittlebone.org Useful information on issues surrounding brittle bone diseases including news, help and advice, recent research and links.
www.dsa-uk.com Down’s Syndrome Association website with details on health, speech and language therapy, education and welfare as well as information and support for new parents.
www.headway.org.uk The Brain Injury Association website containing information on publications, local branches, support for families etc
www.macmillan.org.uk The Macmillan Cancer Relief website with details of the services provided by Macmillan, information and advice, news and publications.
www.mssociety.org.uk The Multiple Sclerosis Society site containing a ‘New Carers’ page found under ‘Living with MS’.
www.parkinsons.org.uk The website of the Parkinson’s Disease Society containing useful fact sheets . Also a section on ‘Carers, Families and Friends under ‘Living with Parkinsons’.
www.rarechromo.org Rare Chromosome Disorder Support Group. A source of information and support for families and carers.
www.rheumatoid.org.uk The National Rheumatoid Arthritis Society website containing advice and information on all aspects of the disease.
www.rnid.org.uk A comprehensive site including fact sheets on many aspects of deafness, hearing loss and tinnitus.
www.rnib.org.uk A range of information about sight loss, useful products, education, employment, leisure etc.
www.scope.org.uk The Cerebral Palsy information and support organisation for families and carers of people with Cerebral Palsy
www.stroke.org.uk The Stroke Association website including family support, details of stroke clubs and useful booklets including a carers guide.
www.tht.org.uk A comprehensive site covering all aspects of HIC and AIDS.
www.wsdeaf.org.uk West Sussex Deaf and Hard of Hearing Association. Information for deaf, deaf blind and hard of hearing people in West Sussex.
Learning disabilities
www.learningdisabilities.org.uk The Foundation for People with Learning Disabilities site that provides information on the causes, syndromes and rights of those with learning difficulties.
www.mencap.org.uk Support and information for families/carers of children with learning difficulties.
www.nas.org.uk Information for people with autism, their families/carers.
General Information including information on Benefits
www.acwestsussex.org Age Concern West Sussex with links to the national organisation site and their broad range of fact sheets.
www.adviceguide.org.uk The national Citizens Advice Bureau site
www.crusebereavementcare.org.uk A site for anyone who has been affected by death including ‘When someone dies’, ‘Helping children’ and ‘Coping with major personal crisis’.
www.disabilityalliance.org Designed for people with disabilities, their carers and anyone who needs advice on benefits.
www.helptheaged.org.uk Information sheets on benefits, paying for care, equipment etc
Mental Health
www.connects.org.uk The mental health and learning disability site containing information o health and learning disabilities, news items and events.
www.mentalhealth.org.uk The Mental Health Foundation site with information on problems, treatments and strategies for living as well as fact sheets including one for carers of people with mental health problems.
www.mind.org.uk Has a wide range of information about mental health, how to get help and approaches to care.
www.rethink.org Information for people affected by severe mental illness, including Schizophrenia as well as their carers and families.
www.sane.org.uk The Saneline website - Providing information and support for those experiencing mental health problems, their families and carers.
Disability and Equipment
www.dlf.org.uk Disabled Living Foundation containing fact sheets on specific pieces of equipment including suppliers and possible sources of funding
www.drc-gb.org The Disability Rights Commission providing advice and information on the rights of disabled people.
www.remap.org.uk REMAP produces Technical equipment adapted to match the particular needs of the disabled person
www.ricability.org.uk Research and information for consumers with disabilities
www.youreable.com provides information, products and services for the disabled.
Holidays
www.holidaycare.org.uk Information for people with disabilities and their carers on travel ad holiday information both in the UK and abroad.
www.johngrooms.org.uk A holiday service for disabled people providing information on accessible hotel and self-catering holiday properties.
www.radar.org.uk Information about accessible holidays
Information about care home providers
www.bettercaring.co.uk produced by the Stationary Office, has a searchable database of 18,600 residential and nursing homes across the country. It also has advice and information on fees, selecting the right home etc.
www.caringinfo.com Information on West Sussex residential homes and other independent care providers
www.helptheaged.org.uk/carefees Advice on the best way to meet the costs of care as well as the types of care available.
www.housingcare.org The site of the Elderly Accommodation Council with advice and information on all types of accommodation for older people.
www.nhfa.co.uk Nursing Homes Fees Agency provides advice and information on obtaining and paying for all types of care. The site covers legal matters, choosing a home and useful contacts.
Young Carers
www.childrenssociety.org.uk/youngcarers A national young carers website
www.sibspace.org A website for brothers and sisters of children with all disabilities enabling them to get in touch with each other.
Local Government Websites
www.chichester.gov.uk The Chichester District Council website
www.arun.gov.uk The Arun District Council website
www.westsussex.gov.uk The West Sussex County Council website with links to Caring Services and Social Services.
Would you like a break from your caring role? Why not apply to the Short Breaks for Carers fund administered here at the Carers Support Service (CSS). Telephone 01243 537011 for more detailsCome to one of our events to talk to other carers about their similar situations or just come to relax in a friendly environment.Please see Events for more information.If you need respite care for your cared for, please call the CSS on 01243 537011.We also have Carers Support Groups that run monthly in Bognor Regis, Chichester, Selsey and the Wittering area.They are there to support you through your caring role and organise days outs, tea and chat and speakers both fun and educational.For more information or to come to one of our events or support groups please call the CSS on 01243 537011.Grants for CarersA Princess Royal Trust for Carers Grant may be able to help Carers financially. Click here for more details.We also have information on the Kathleen and Sidney Linkins Memorial Trust Fund offering help to people in need over the age of 60Please call the CSS on 01243 537011 for more informationTop Ten is a list of the organisations that we refer carers to most often.Carers Information Highway is an exercise to help those working with carers assess their information provision. |
